Friday, April 14, 2017

Take 3

Not sure if I will have the time and energy to keep up on this blog but having been off the minerals for a loooong time we are going to give them another try.

2 years ago we added another child to our family who also has CP. E is now 5. 3 weeks ago we started him on the minerals and like N his heal cords are clearly releasing! This brought me back to this blog where I was reminded of the incredible progress N had on the minerals both times. Unfortunately she now is beyond released at the heal cords (happens with surgery too so likely would have happened whether released by surgery or minerals) and with her growing like mad (she is 12 now), which means growing faster than her hamstrings can keep up with AND heavier on her ankles, she really needs her ground reaction DAFOs to be at a 90 degree angle to even give her the possibility of standing up straight, however, that is not currently what she has. Both N and E are scheduled for SDR (Selective Dorsal Rhizotomy) surgery this summer. Now we prepare for great success!

So here we go. (I will try to track both kids on this blog)


E is currently on DAY 26
N is starting back on DAY 1

(pics of E standing at sink taken on April 5, 2017 & April 13, 2017)


Here are recent videos of the kids, originally taken for the purpose of having pre SDR surgery levels. 

(the dates are wrong on the videos, was actually March 19th but doesn't really matter)






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